The parents were thrilled to finally see their newborn daughter, but they were shocked to learn following the cesarean section birth that their child’s mouth was not developing “naturally.” The corners of Ayla Summer Mucha’s lips did not fully fuse during pregnancy due to a rare bilateral Macrostomia disease, and she will likely have birth abnormalities in the future.
The mouth corners of Ayla Summer Mucha, who was born in December 2021, did not stick together during pregnancy due to bilateral stomata. There have only been 14 examples of the ailment reported worldwide. As their daughter may not be able to latch on or suckle, parents Cristina Vercher, 21, and husband Blaize Mucha, 20, are already discussing surgery with surgeons to repair her broad smile. Vercher, who resides in South Australia, told Jam Press, “Blaize and I didn’t know about the ailment and I’ve never known somebody born with stomatitis, so it came as a shock.”
Additionally, the pregnant women’s ultrasound scans did not reveal any unusually large mouth holes that would have been uncomfortable for the clinicians to perform the scans on. This made the encounter even more unpleasant because it took the doctor a few hours to respond, and it was harder because the hospital provided little information or assistance for the patient. Such an unusual instance. Given that I was so haughty throughout my pregnancy, all I can think about as a mother is where did I do wrong. Numerous doctors reassured them that they had no influence over it. Because they had never encountered a case like this before and because prenatal tests had missed it, medical professionals at Flinders Medical Center in Adelaide, South Australia, were initially perplexed. Macrostomia affects babies’ behavior, particularly while latching and eating, and is more than just an odd visual condition.
People with macrostomia frequently need surgery because it affects facial function. “Although we have not yet received the precise details of the procedure, we do know that it involves skin closure with little scarring. The difficulties we will experience following the operation are a troubling couple. People with Alya’s disease are encouraged to get surgery for medical reasons in order to help ensure that they will have a functional mouth when they are adults.
On their account with more than 118,000 followers, A few months later, in search of more information and awareness, Cristina and Blaize opened a TikTok account to share their experiences. One video, which has received 47.4 million views, shows Ayla wearing a floral dress – and she’s showered with all the love.
“Ask respectfully as a mother. Can you create more content to educate us about her. I would love to learn more about how beautiful she is,” another commented.
“Oh my God. You are so adorable!! ignore all those hurtful comments, your little cuteness is just too sweet,” one user wrote.
